Tuesday, 22 January 2008


Jordan's special needs derive from an attack of meningitis when he was a year old. I think awareness of the symptoms has got a lot better in recent years. So here is the link to the excellent Meningitis Trust.

Thursday, 17 January 2008

Let the bells ring out.

Jordan took a bath by himself! First time ever. I was banished to the lower reaches of the house. I tell you it looked like the command deck of the Titanic by the time he'd finished.

Wednesday, 16 January 2008

If it's not one thing, it's another...

...as flu rages through the population, Jordan's lovely PA Thomas got an infection called Orbital Cellulitis, was hospitalised and nearly lost the sight in one eye. You can read about it here. Tom is better now and out of hospital, thank goodness.

Monday, 14 January 2008

And the good news is...

...that we don't have Fragile-X syndrome, which as you can imagine, we are pleased about. However other investigations continue to see if any other chromosomal abnormalities are present. Funnily enough, the search has shifted away from the boy to the possible cause of my own eye problems: namely STICKLER SYNDROME. There is an interesting website and support group here.

Thursday, 3 January 2008

New Year resolution

Mine was to de-clutter the house by a third. Not just because the gradual accumulation of useless objects was driving me crazy but also because Jordan fell again before Christmas (in a non-clutter related mishap) and if the boy is to successfully negotiate his environment with a damaged limb then space must be made for grab bars and so forth.
I tried to find a good image related to de-cluttering but kept getting Feng Shui pictures. I don't think we want to go there.